Journal of Clinical Epidemiology
Volume 53, Issue 2 , Pages 139-146, February 2000

Clinimetric properties of a parent report on their offspring's quality of life

  • E.M. le Coq

      Affiliations

    • Institute for Research in Extramural Medicine, Vrije Universiteit, Van der Boechorststraat 7, Amsterdam, The Netherlands,
    • Department of General Practice, Nursing Home Medicine and Social Medicine, Vrije Universiteit, Amsterdam, The Netherlands,
    • ,
  • A.J.P. Boeke

      Affiliations

    • Institute for Research in Extramural Medicine, Vrije Universiteit, Van der Boechorststraat 7, Amsterdam, The Netherlands,
    • Department of General Practice, Nursing Home Medicine and Social Medicine, Vrije Universiteit, Amsterdam, The Netherlands,
    • ,
  • P.D. Bezemer

      Affiliations

    • Institute for Research in Extramural Medicine, Vrije Universiteit, Van der Boechorststraat 7, Amsterdam, The Netherlands,
    • Department of Epidemiology and Biostatistics, Faculty of Medicine, Vrije Universiteit, Amsterdam, The Netherlands,
    • ,
  • J. Bruil

      Affiliations

    • Department of Clinical and Health Psychology, University of Leiden, The Netherlands
    • ,
  • J.Th.M. van Eijk

      Affiliations

    • Department of Medical Sociology, University of Maastricht, The Netherlands
    • Corresponding Author InformationCorresponding author. +31 43 388 2283; fax: +31 43 388 4169

Received 22 September 1998; received in revised form 27 July 1999; accepted 30 July 1999.

Abstract 

The objective of this study was to assess the reproducibility, construct validity, and responsiveness of the parent report version of the “How are you” (HAY), a quality of life questionnaire for children with a chronic disease. The reproducibility of the HAY was assessed by comparing the scores of two measurement cycles of children with stable asthma. Construct validity was evaluated by testing the differences between scores of the HAY of parents of children with and without asthma and by investigating the correlations between the HAY and instruments supposed to correlate with the HAY. Responsiveness was investigated in parents of children whose clinical status changed clinically relevant between two measurements. The HAY showed acceptable reproducibility. Also the HAY detected anticipated differences in quality of life between parents of asthmatic and healthy children. It furthermore showed acceptable ability to measure change in health status of children with asthma. The parent report version of the HAY shows acceptable reproducibility, supportive evidence for construct validity, and good responsiveness. The measurement of quality of life of asthmatic children and changes therein can truly rely on parental report.

Keywords:  Asthma, Quality of life, Methodology, Validity, Reproducibility, Responsiveness

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PII: S0895-4356(99)00158-4

Journal of Clinical Epidemiology
Volume 53, Issue 2 , Pages 139-146, February 2000

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