Journal of Clinical Epidemiology
Volume 63, Issue 10 , Pages 1101-1109 , October 2010

Data linkage reduces loss to follow-up in an observational HIV cohort study

  • Teresa Hill

      Affiliations

    • Research Department of Infection and Population Health, UCL Medical School, London, UK
    • Corresponding Author InformationCorresponding author. Research Department of Infection and Population Health, UCL Medical School, University College London, London NW3 2PF, UK. Tel.: +44-0-20-7830-2239 ext. 36762; fax: +44-0-20-7794-1224.
    • ,
  • Loveleen Bansi

      Affiliations

    • Research Department of Infection and Population Health, UCL Medical School, London, UK
    • ,
  • Caroline Sabin

      Affiliations

    • Research Department of Infection and Population Health, UCL Medical School, London, UK
    • ,
  • Andrew Phillips

      Affiliations

    • Research Department of Infection and Population Health, UCL Medical School, London, UK
    • ,
  • David Dunn

      Affiliations

    • MRC Clinical Trials Unit, London, UK
    • ,
  • Jane Anderson

      Affiliations

    • Homerton University Hospital NHS Trust, London, UK
    • ,
  • Philippa Easterbrook

      Affiliations

    • King's College Hospital NHS Trust, London, UK
    • ,
  • Martin Fisher

      Affiliations

    • Brighton and Sussex University Hospitals NHS Trust, Brighton, UK
    • ,
  • Brian Gazzard

      Affiliations

    • Chelsea and Westminster NHS Trust, London, UK
    • ,
  • Richard Gilson

      Affiliations

    • Mortimer Market Centre, UCL Medical School, London, UK
    • ,
  • Margaret Johnson

      Affiliations

    • Royal Free NHS Trust and UCL Medical School, London, UK
    • ,
  • Clifford Leen

      Affiliations

    • The Lothian University Hospitals NHS Trust, Edinburgh, UK
    • ,
  • Chloe Orkin

      Affiliations

    • Barts and The London NHS Trust, London, UK
    • ,
  • Achim Schwenk

      Affiliations

    • North Middlesex University Hospital NHS Trust, London, UK
    • ,
  • John Walsh

      Affiliations

    • Imperial College Healthcare NHS Trust, London, UK
    • ,
  • Alan Winston

      Affiliations

    • Imperial College Healthcare NHS Trust, London, UK
    • ,
  • Abdel Babiker

      Affiliations

    • MRC Clinical Trials Unit, London, UK
    • ,
  • Valerie Delpech

      Affiliations

    • Health Protection Agency Centre for Infections London (HPA CfI) London, UK
    • ,
  • UK Collaborative HIV Cohort (UK CHIC) Study Group

,Accepted 4 December 2009.

References 

  1. von Elm E, Altman DG, Egger M, Pocock SJ, Gotzsche PC, Vandenbroucke JP for the STROBE Initiative. The strengthening and reporting of observational studies in epidemiology (STROBE) statement: guidelines for reporting observational studies. J Clin Epidemiol. 2008;61:344–349
  2. Moher D, Schulz KF, Altman DG. The CONSORT statement: revised recommendations for improving the quality of reports of parallel-group randomised trials. Lancet. 2001;357:1191–1194
  3. Altman DG, Schulz KF, Moher D, Egger M, Davidoff F, Elbourne D, et al. The revised CONSORT statement for reporting randomized trials: explanation and elaboration. Ann Intern Med. 2001;134:663–694
  4. The UK Collaborative HIV Cohort Steering Committee. The creation of a large UK-based multicentre cohort of HIV-infected individuals: the UK Collaborative HIV Cohort (UK CHIC) Study. HIV Med. 2004;5:115–124
  5. Reekie J, Mocroft A, Sambatakou H, Machala L, Chiesi A, van Lunzen J, et al. EuroSIDA Study Group Does less frequent routine monitoring of patients on a stable, fully suppressed cART regimen lead to an increased risk of treatment failure?. AIDS. 2008;22:2381–2390
  6. Arici C, Ripamonti D, Maggiolo F, Rizzi M, Finazzi MG, Pezzotti P, et al. Factors associated with the failure of HIV-positive persons to return for scheduled medical visits. HIV Clin Trials. 2002;3:52–57
  7. Mocroft A, Kirk O, Aldins P, Chies A, Blaxhult A, Chentsova N, et al. for the EuroSIDA Study Group Loss to follow-up in an international, multicentre observational study. HIV Med. 2008;9:261–269
  8. Prime K, Sethi G, Navaratne L, Dean G, Fox E, Sabin C, et al. Differences in presentation and follow-up between HIV-1 antibody positive teenagers and adults: the need for a more focused approach to care?. AIDS. 2003;17:260–262
  9. Lebouché B, Yazdanpanah Y, Gérard Y, Sissoko D, Ajana F, Alcaraz I, et al. Incidence rate and risk factors for loss to follow-up in a French clinical cohort of HIV-infected patients from January 1985 to January 1998. HIV Med. 2006;7:140–145
  10. Lanoy E, Mary-Krause M, Tattevin P, Dray-Spira R, Duvivier C, Fischer P, et al. and the Clinical Epidemiology Group of the French Hospital Database on HIV infection Predictors identified for losses to follow-up among HIV-seropositive patients. J Clin Epidemiol. 2006;59:829–835
  11. Brettle RP, Willocks L, Hamilton BA, Shaw L, Leen CL, Richardson A, et al. Out-patient medical care in Edinburgh for IDU-related HIV. AIDS Care. 1994;6:49–58
  12. Ioannidis JP, Bassett R, Hughes MD, Volberding PA, Sacks HS, Lau J. Predictors and impact of patients lost to follow-up in a long-term randomized trial of immediate versus deferred antiretroviral treatment. J Acquir Immune Defic Syndr Hum Retrovirol. 1997;16:22–30
  13. Porter K, Johhson AM, Phillips AN, Darbyshire JH. The practical significance of potential biases in estimates of the AIDS incubation period distribution in the UK Register of HIV Seroconverters. AIDS. 1999;13:1943–1951

PII: S0895-4356(10)00017-X

doi: 10.1016/j.jclinepi.2009.12.007

Journal of Clinical Epidemiology
Volume 63, Issue 10 , Pages 1101-1109 , October 2010

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