Journal of Clinical Epidemiology
Volume 63, Issue 5 , Pages 535-542 , May 2010

Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions

  • Irene J. Higginson

      Affiliations

    • King's College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy's, King's College and St Thomas' Hospitals, London, United Kingdom
    • Corresponding Author InformationCorresponding author. Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy's, King's College and St Thomas' Hospitals, King's College London, Weston Education Centre, 3rd Floor, Cutcombe Road, Denmark Hill, London SE5 9RJ, United Kingdom. Tel.: +44-0-20-7848-5516; fax: +44-0-20-7848-5517.
  • ,
  • Wei Gao

      Affiliations

    • King's College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy's, King's College and St Thomas' Hospitals, London, United Kingdom
  • ,
  • Diana Jackson

      Affiliations

    • King's College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy's, King's College and St Thomas' Hospitals, London, United Kingdom
  • ,
  • Joanna Murray

      Affiliations

    • King's College London, Health Service and Population Research Department, Institute of Psychiatry, David Goldberg Centre, London, United Kingdom
  • ,
  • Richard Harding

      Affiliations

    • King's College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy's, King's College and St Thomas' Hospitals, London, United Kingdom

,Accepted 3 June 2009.

References 

  1. Charlton R. Palliative care in non-cancer patients and the neglected caregiver. J Clin Epidemiol. 1992;45:1447–1449
  2. Hung SY, Pickard AS, Witt WP, Lambert BL. Pain and depression in caregivers affected their perception of pain in stroke patients. J Clin Epidemiol. 2007;60:963–970
  3. Maher J, Green H. Carers 2000. Office for National Statistics. London: The Stationary Office; 2002;
  4. The Resource Implications Study Group of the MRC Study of Cognitive Function and Aging (RIS MRC CFAS) . Psychological morbidity among informal caregivers of older people: a 2-year follow-up study. The Resource Implications Study Group of the MRC study of cognitive function and ageing (RIS MRC CFAS). Psychol Med. 2000;30:943–955
  5. Harding R, Higginson IJ. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med. 2002;17:63–71
  6. Harding R, Higginson IJ, Leam C, Donaldson N, Pearce A, George R, et al. Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service. J Pain Symptom Manage. 2004;27:396–408
  7. Harvey K, Catty J, Langman A, Winfield H, Clement S, Burns E, et al. A review of instruments developed to measure outcomes for carers of people with mental health problems. Acta Psychiatr Scand. 2008;117:164–176
  8. Visser-Meily JM, Post MW, Riphagen , Lindeman E. Measures used to assess burden among caregivers of stroke patients: a review. Clin Rehabil. 2004;18:601–623
  9. Mularski RA, Dy SM, Shugarman LR, Wilkinson AM, Lynn J, Shekelle PG, et al. A systematic review of measures of end-of-life care and its outcomes 3. Health Serv Res. 2007;42:1848–1870
  10. Goldstein NE, Concato J, Fried TR, Kasl SV, Johnson-Hurzeler R, Bradley EH. Factors associated with caregiver burden among caregivers of terminally ill patients with cancer. J Palliat Care. 2004;20:38–43
  11. Schneider J, Hallam A, Murray J, Foley B, Atkin L, Banerjee S, et al. Formal and informal care for people with dementia: factors associated with service receipt. Aging Ment Health. 2002;6:255–265
  12. Alvarez-Ude F, Valdes C, Estebanez C, Rebollo P. Health-related quality of life of family caregivers of dialysis patients. J Nephrol. 2004;17:841–850
  13. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20:649–655
  14. Gort AM, Mingot M, Gomez X, Soler T, Torres G, Sacristan O, et al. Use of the Zarit scale for assessing caregiver burden and collapse in caregiving at home in dementias. Int J Geriatr Psychiatry. 2007;22:957–962
  15. O'Rourke N, Tuokko HA. The relative utility of four abridged versions of the Zarit Burden Interview. J Ment Health Aging. 2003;9:55–64
  16. Chenier MC. Review and analysis of caregiver burden and nursing home placement. Geriatr Nurs. 1997;18:121–126
  17. Bachner YG, O'Rourke N. Reliability generalization of responses by care providers to the Zarit Burden Interview. Aging Ment Health. 2007;11:678–685
  18. Zarit SH, Orr RD, Zarit JM. The hidden victims of Alzheimer's disease: families under stress. New York: New York University Press; 1985;
  19. Bédard M, Molloy DW, Squire L, Dubois S, Lever JA, O'Donnell M. The Zarit Burden Interview: a new short version and screening version. Gerontologist. 2001;41:652–657
  20. Gort AM, March J, Gomez X, de MM, Mazarico S, Balleste J. [Short Zarit scale in palliative care], Med Clin (Barc). 2005;124:651–653
  21. Arai Y, Tamiya N, Yano E. [The short version of the Japanese version of the Zarit Caregiver Burden Interview (J-ZBI_8): its reliability and validity], Nippon Ronen Igakkai Zasshi. 2003;40:497–503
  22. Goodwin DM, Higginson IJ, Myers K, Douglas H-R, Normand C. Effectiveness of palliative day care in improving pain, symptom control and quality of life. J Pain Symptom Manage. 2003;25:202–212
  23. Higginson IJ, Donaldson N. Relationship between three palliative care outcome scales. Health Qual Life Outcomes. 2004;2:68–75
  24. Jackson D, Turner-Stokes L, Murray J, Leese M, McPherson KM. Acquired brain injury and dementia: a comparison of carer experiences. Brain Inj. 2009;23:1–12
  25. Banerjee S, Murray J, Foley B, Atkins L, Schneider J, Mann A. Predictors of institutionalisation in people with dementia. J Neurol Neurosurg Psychiatry. 2003;74:1315–1316
  26. Knowles ES, Condon CA. Why people say “Yes”: a dual-process theory of acquiescence. J Pers Soc Psychol. 1999;77:379–386
  27. Shaffer JP. Multiple hypothesis-testing. Annu Rev Psychol. 1995;46:561–584
  28. Whitlatch CJ, Zarit SH, von EA. Efficacy of interventions with caregivers: a reanalysis. Gerontologist. 1991;31:9–14
  29. Hebert R, Bravo G, Preville M. Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia. Can J Aging. 2000;19:494–507
  30. Knight BG, Fox LS, Chou CP. Factor structure of the burden interview. J Clin Geropsychol. 2000;6:249–258
  31. O'Rourke N, Tuokko HA. Psychometric properties of an abridged version of The Zarit Burden Interview within a representative Canadian caregiver sample. Gerontologist. 2003;4:121–127
  32. Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60:34–42
  33. Nunnally JC, Bernstein IH. Psychometric theory. New York: McGraw-Hill; 1994;
  34. Coffin M, Sukhatme S. Receiver operating characteristic studies and measurement errors. Biometrics. 1997;53:823–837
  35. Weinstein MC, Fineberg HV, Elstein AS, Frazier HS, Neuhauser D, Neutra RR, et al. Clinical decision analysis. Philadelphia: WB Saunders; 1980;
  36. Lim JW, Zebrack B. Caring for family members with chronic physical illness: a critical review of caregiver literature. Health Qual Life Outcomes. 2004;2:50
  37. Harding R, Higginson I. Working with ambivalence: informal caregivers of patients at the end of life. Support Care Cancer. 2001;9:642–645
  38. Bossuyt PM, Reitsma JB, Bruns DE, Gatsonis CA, Glasziou PP, Irwig LM, et al. Towards complete and accurate reporting of studies of diagnostic accuracy: the STARD initiative. Ann Intern Med. 2003;138:40–44
  39. Fletcher RH, Fletchher SW. Prevention. In:  Fletcher RH,  Fletchher SW editor. Clinical epidemiology: the essentials. Baltimore, MD: Lippincott Williams & Wilkins; 2005;p. 158–161
  40. Kirshner B, Guyatt G. A methodological framework for assessing health indices. J Chronic Dis. 1985;38:27–36

 Competing interests: None.

PII: S0895-4356(09)00227-3

doi: 10.1016/j.jclinepi.2009.06.014

Journal of Clinical Epidemiology
Volume 63, Issue 5 , Pages 535-542 , May 2010