Journal of Clinical Epidemiology
Volume 58, Issue 8 , Pages 791-801 , August 2005

A study compared nine patient-specific indices for musculoskeletal disorders

  • Brigitte M. Jolles

      Affiliations

    • Hôpital Orthopédique de la Suisse Romande, Centre Hospitalier Universitaire Vaudois CHUV, University of Lausanne, 4, Avenue Pierre Decker, 1005 Lausanne, Switzerland
    • Corresponding Author InformationCorresponding author. Tel.:+41-21-545-0629; fax:+41-21-545-0625.
  • ,
  • Rachelle Buchbinder

      Affiliations

    • Department of Clinical Epidemiology, Cabrini Hospital and Monash University Department of Epidemiology and Preventive Medicine, Melbourne, Victoria, Australia
  • ,
  • Dorcas E. Beaton

      Affiliations

    • Mobility Program Clinical Research Unit, St Michael's Hospital, Institute for Work and Health, University of Toronto, Toronto, Ontario, Canada

,Accepted 7 January 2005.

References 

  1. Ware JE, Snow KK, Kosinski M. SF-36 Health Survey: manual and interpretation guide. Lincoln, RI: QualityMetric; 2000;
  2. Pincus T, Summey JA, Soraci SA, Wallston KA, Hummon NP. Assessment of patient satisfaction in activities of daily living using a modified Stanford Health Assessment Questionnaire. Arthritis Rheum. 1983;26:1346–1353
  3. Gill TM, Feinstein AR. A critical appraisal of the quality of quality-of-life measurements. JAMA. 1994;272:619–626
  4. O'Boyle CA, Waldron D. Quality of life issues in palliative medicine. J Neurol. 1997;244(Suppl 4):S18–S25
  5. Calman KC. Quality of life in cancer patients: an hypothesis. J Med Ethics. 1984;10:124–127
  6. Nordeson A, Engstrom B, Norberg A. Self-reported quality of life for patients with progressive neurological diseases. Qual Life Res. 1998;7:257–266
  7. Wright JG, Rudicel S, Feinstein AR. Ask patients what they want: evaluation of individual complaints before total hip replacement. J Bone Joint Surg Br. 1994;76B:229–234
  8. Beaton DE, Hogg-Johnson S, Bombardier C. Evaluating changes in health status: reliability and responsiveness of five generic health status measures in workers with musculoskeletal disorders. J Clin Epidemiol. 1997;50:79–93
  9. Beaton DE, Bombardier C, Hogg-Johnson SA. Measuring health in injured workers: a cross-sectional comparison of five generic health status instruments in workers with musculoskeletal injuries. Am J Ind Med. 1996;29:618–631
  10. Stratford PW, Gill C, Westaway M, Binkley JM. Assessing disability and change on individual patients: a report of a patient-specific measure. Physiother Can. 1995;47:258–263
  11. Law M, Baptiste S, Carswell-Opzoomer A, McColl M, Polatajko H, Pollock N. Canadian Occupational Performance Measure manual. Ottawa, Ontario: CAOT Publications ACE; 1998;
  12. Wright JG, Young NL. The Patient-Specific Index: asking patients what they want. J Bone Joint Surg Am. 1997;79A:974–983
  13. Bombardier C, Tugwell P. Methodological considerations in functional assessment. J Rheumatol. 1987;14(Suppl 15):6–10
  14. Feinstein AR. The theory and evaluation of sensibility. In: Clinimetrics. New Haven and London: Yale University Press; 1987;p. 141–166
  15. Kirshner B, Guyatt G. A methodological framework for assessing health indices. J Chronic Dis. 1985;38:27–36
  16. Nunnally JC. Psychometric theory. 2nd ed.. New York: McGraw-Hill; 1978;
  17. Buchbinder R, Goel V, Bombardier C, Hogg-Johnson S. Classification systems of soft tissue disorders of the neck and upper limb: do they satisfy methodological guidelines?. J Clin Epidemiol. 1996;49:141–149
  18. Kiresuk T, Sherman R. Goal attainment scaling: a general method for evaluating comprehensive community mental health programs. Community Ment Health J. 1968;4:443–453
  19. Battle CC, Imber SD, Hoehn-Saric R, Nash ER, Frank JD. Target complaints as criteria of improvement. Am J Psychother. 1966;20:184–192
  20. MacKenzie CR, Charlson ME, DiGioia D, Kelley K. A patient-specific measure of change in maximal function. Arch Intern Med. 1986;146:1325–1329
  21. Duffy CM, Arsenault L, Duffy KN, Paquin JD, Strawczynski H. The Juvenile Arthritis Quality of Life Questionnaire: development of a new responsive index for juvenile rheumatoid arthritis and juvenile spondyloarthritides. J Rheumatol. 1997;24:738–746
  22. Tugwell P, Bombardier C, Buchanan WW, Goldsmith CH, Grace E, Hanna B. The MACTAR patient preference disability questionnaire: an individualized functional priority approach for assessing improvement in physical disability in clinical trials in rheumatoid arthritis. J Rheumatol. 1987;14:446–451
  23. Paterson C. Measuring outcomes in primary care: a patient generated measure, MYMOP, compared with the SF-36 survey. BMJ. 1996;312:1016–1020
  24. Bell MJ, Bombardier C, Tugwell P. Measurement of functional status, quality of life, and utility in rheumatoid arthritis. Arthritis Rheum. 1990;33:591–601
  25. Ruta DA, Garratt AM, Leng M, Russell IT, MacDonald LM. A new approach to the measurement of quality of life: the Patient-Generated Index. Med Care. 1994;32:1109–1126
  26. McGee HM, O'Boyle CA, Hickey A, O'Malley K, Joyce CRB. Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroenterology unit population. Psychol Med. 1991;21:749–759
  27. Canadian Association of Occupational Therapists . Guidelines for client-centred practice of occupational therapy. Ottawa, Ontario: CAOT Publications ACE; 1991;
  28. Carpenter L, Baker GA, Tyldesley B. The use of the Canadian Occupational Performance Measure as an outcome of a pain management program. Can J Occup Ther. 2001;68:16–22
  29. Duffy CM, Tucker L, Burgos-Vargas R. Update on functional assessment tools. J Rheumatol. 2000;27(Suppl 58):11–14
  30. Grace EM, Duku E, Goldsmith CH, Tugwell P. MACTAR Scoring Guidelines. March 25, 1996. Ottawa, ON: University of Ottawa; 1996;
  31. Paterson C, Britten N. In pursuit of patient-centred outcomes: a qualitative evaluation of the “Measure Yourself Medical Outcome Profile”. J Health Serv Res Policy. 2000;5:27–36
  32. Buchbinder R. Problem elicitation technique: interviewer's manual. December 9, 1990. Toronto: University of Toronto; 1990;
  33. Buchbinder R, Bombardier C, Yeung M, Tugwell P. Which outcome measures should be used in rheumatoid arthritis clinical trials? Clinical and quality-of-life measures' responsiveness to treatment in a randomized controlled trial. Arthritis Rheum. 1995;38:1568–1580
  34. Tugwell P, Wells G, Strand V, Maetzel A, Bombardier C, Crawford B, et al. Leflunomide Rheumatoid Arthritis Investigators Group. Clinical improvement as reflected in measures of function and health-related quality of life following treatment with leflunomide compared with methotrexate in patients with rheumatoid arthritis: sensitivity and relative efficiency to detect a treatment effect in a twelve-month placebo-controlled trial. Arthritis Rheum. 2000;43:506–514[Erratum in: Arthritis Rheum 2000 Jun;43(6):1345]
  35. Tully MP, Cantrill JA. The validity of the modified patient generated index: a quantitative and qualitative approach. Qual Life Res. 2000;9:509–520
  36. Ruta DA, Garatt AM, Russell IT. Patient centered assessment of quality of life for patients with four common conditions. Qual Health Care. 1999;8:22–29
  37. Stratford PW, Binkley JM, Riddle DL. Health status measures: strategies and analytic methods for assessing change scores. Phys Ther. 1996;76:1109–1123
  38. Wright JG, Young NL, Waddell JP. The reliability and validity of the self-reported patient-specific index for total hip arthroplasty. J Bone Joint Surg Am. 2000;82A:829–837
  39. Browne JP, O'Boyle CA, McGee HM, McDonald NJ, Joyce CRB. Development of a direct weighting procedure for quality of life domains. Qual Life Res. 1997;6:301–309
  40. O'Boyle CA, McGee HM, Hickey A, Joyce CRB, Browne JP, O'Malley K. The Schedule for the Evaluation of Individual Quality of Life (SEIQoL): administration manual. Dublin: Royal College of Surgeons in Ireland; 1993;
  41. Portney LG, Watkins MP. Foundations of clinical research: applications to practice. 2nd ed.. Upper Saddle River, NJ: Prentice Hall Health; 2000;
  42. Canadian Association of Occupational Therapists . Occupational therapy guidelines for client-centred practice. Toronto, ON: CAOT Publications; 1991;
  43. Guyatt GH, Berman LB, Townsend M, Pugsley SO, Chambers LW. A measure of quality of life for clinical trials in chronic lung disease. Thorax. 1987;42:773–778
  44. Hoinville G. The priority evaluator method. Methodological Working Paper 3. London, England: London University; 1977;
  45. World Health Organization . The first ten years of the World Health Organization. Geneva: World Health Organization; 1958;
  46. Singsen BH. Health status (arthritis impact) in children with chronic rheumatic diseases: current measurement issues and an approach to instrument design. Arthritis Care Res. 1991;4:87–101
  47. Joyce CRB. Psychosocial benefits. In:  Walker SR,  Asscher AW editor. Medicine and risk/benefit decisions. Lancaster: MTP Press; 1987;p. 99–109
  48. Joyce CRB. Quality of life: the state of the art in clinical assessment. In:  Walker SR,  Rosser RM editor. Quality of life assessment and application: proceedings of the Centre for Medicines Research Workshop held at the CIBA Foundation, London, March 3, 1987. Lancaster; Boston: MTP Press; 1988;p. 169–179
  49. Last JM, Spasoff RA, Harris SS, Thuriaux MC. International Epidemiological Association. A dictionary of epidemiology. New York: Oxford University Press; 2001;
  50. Sheatsley PB. Questionnaire construction and item writing. In:  Rossi PH,  Wright JD,  Anderson AB editor. Handbook of survey research. New York: Academic Press; 1983;p. 195–230
  51. Streiner DL, Norman GR. Scaling responses. In: Health measurement scales: a practical guide to their development and use. 2nd ed.. Oxford, UK: Oxford University Press; 1995;p. 28–53
  52. Miller GA. The magical number seven, plus or minus two: some limits on our capacity for processing information. Psychol Rev. 1994;101:343–352[partial reprint from Psychol Rev 1956;63:81–97]
  53. McColl MA, Paterson M, Davies D, Doubt L, Law M. Validity and community utility of the Canadian Occupational Performance Measure. Can J Occup Ther. 2000 Feb;67(1):22–30
  54. Wright JG, Young NL. A comparison of different indices of responsiveness. J Clin Epidemiol. 1997;50:239–246
  55. Donnelly C, Carswell A. Individualized outcome measures: a review of the literature. Can J Occup Ther. 2002;69:84–94
  56. Lintern TC, Beaumont JG, Kenealy PM, Murrell RC. Quality of life (QoL) in severely disabled multiple sclerosis patients: comparison on three QoL measures using multidimensional scaling. Qual Life Res. 2001;10:371–378

PII: S0895-4356(05)00111-3

doi: 10.1016/j.jclinepi.2005.01.012

Journal of Clinical Epidemiology
Volume 58, Issue 8 , Pages 791-801 , August 2005