Journal of Clinical Epidemiology
Volume 56, Issue 11 , Pages 1055-1063 , November 2003

Use of the EQ-5D among patients suffering from dementia

  • J Ankri

      Affiliations

    • Hôpital Ste Périne, Université de Paris V, RFR 12 Santé Vieillissement Société, 49 rue Mirabeau 75016 Paris, France
    • Corresponding Author InformationCorresponding author. Tel.: 33-1-44-96-32-14; fax: 33-1-44-96-31-46
    • ,
  • B Beaufils

      Affiliations

    • Université Paris VIII, RFR 12 Santé Vieillissement Société, 49 rue Mirabeau 75016 Paris, France
    • ,
  • J.-L Novella

      Affiliations

    • Médecine interne et gérontologie clinique, hôpital Sébastopol 51092 Reims Cedex, France
    • ,
  • I Morrone

      Affiliations

    • Rééducation fonctionnelle, hôpital Sébastopol, 51092 Reims Cedex, France
    • ,
  • F Guillemin

      Affiliations

    • Ecole de Santé Publique, EA 1124, BP 184 54505, Vandoeuvre les Nancy, France
    • ,
  • D Jolly

      Affiliations

    • Département d'information médical, hôpital Maison Blanche, 51092 Reims Cedex, France
    • ,
  • L Ploton

      Affiliations

    • Université Lumières, 69676 Bron Cedex, France
    • ,
  • F Blanchard

      Affiliations

    • Médecine interne et gérontologie clinique, hôpital Sébastopol 51092 Reims Cedex, France

,Accepted 12 May 2003.

References 

  1. Lobo A, Launer LJ, Fratiglioni L, Andersen K, Di Carlo A, Breteler MM, et al. Prevalence of dementia and major subtypes in Europe. A collaborative study of population based cohorts. Neurologic Diseases in the Elderly Research Group. Neurology. 2000;54:S4–S9
  2. Albert SM, Del Castillo-Castaneda C, Sano M, Jacobs DM, Marder K, Bell K, et al. Quality of life in patients with Alzheimer's disease as reported by patient proxies. J Am Geriatr Soc. 1996;44(11):1342–1347
  3. Magaziner J. Use of proxies to measure health and functional outcomes in effectiveness research in persons with Alzheimer's disease and related disorders. Alzheimer Dis Assoc Disord. 1997;11(6):168–174
  4. Brod M, Stewart AL, Sands L, Walton P. Conceptualization and measurement of quality of life in dementia: The Dementia Quality of Life Instrument (DQoL). Gerontologist. 1999;39(1):25–35
  5. Dorman PJ, Waddell F, Slattery J, Dennis M, Sandercock P. Are proxy assessments of health status after stroke with the EQ-5D questionnaire feasible, accurate and unbiased?. Stroke. 1997;28(10):1883–1887
  6. Hays RD, Vickrey BG, Hermann BP, Perrine K, Cramer J, Meador K, et al. Agreement between self reports and proxy reports of quality of life in epilepsy patients. Qual Life Res. 1995;4(2):159–168
  7. Andresen EM, Vahle VJ, Lollar D. Proxy reliability: health-related quality of life (HRQoL) measures for people with disability. Qual Life Res. 2001;10(7):609–619
  8. Yip JY, Wilber KH, Myrtle RC, Grazman DN. Comparison of older adult subject and proxy responses on the SF-36 health-related quality of life instrument. Aging Ment Health. 2001;5(2):136–142
  9. Kiyak HA, Teri L, Borson S. Physical and functional health assessment in normal aging and in Alzheimer's disease: self-report vs family reports. Gerontologist. 1994;34(3):324–330
  10. Brazier JE, Walters SJ, Nicholl JP, Kohler B. Using the SF-36 and EQ-5D on an elderly population. Qual Life Res. 1996;5:195–204
  11. Coast J, Peters TJ, Richards SH, Gunnell DJ. Use of the EuroQol among elderly acute care patients. Qual Life Res. 1998;7:1–10
  12. Fransen M, Edmonds J. Reliability and validity of the EuroQol in patients with osteoarthritis of the knee. Rheumatol. 1999;38(9):807–813
  13. Kind P. In:  Spilker B editors. The EuroQol instrument: an index of health-related quality of life. In: Quality of life and pharmacoeconomics in clinical trials. Philadelphia: Lippincott-Raven; 1996;
  14. Folstein MF, Folstein SE, Mc Hugh PR. Mini mental state. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12(3):189–198
  15. Hughes CP, Berg L, Danziger WL, Coben LA, Martin RL. A new clinical scale for the staging of dementia. Br J Psychiatry. 1982;140:566–572
  16. Katz S, Down T, Cash H, Grotz R. Progress in development of index of, ADL. Gerontologist. 1970;10:20–30
  17. Brazier J, Jones N, Kind P. Testing the validity of the Euroqol and comparing it with the SF-36 Health Survey Questionnaire. Qual Life Res. 1993;2(3):169–180
  18. Johnson JA, Coons SJ. Comparison of the EQ-5D and SF-12 in an adult US sample. Qual Life Res. 1998;7(2):155–166
  19. Dolan PJ, Torgerson D, Kumar Kakarlapudi T. Health-related quality of life of Colles' fracture patients. Osteoporos Int. 1999;9:196–199
  20. Dorman PJ, Waddell F, Slattery J, Dennis M, Sandercock P. Is the Euroqol a valid measure of health-related quality of life after stroke?. Stroke. 1997;28(10):1876–1882
  21. Dorman PJ, Slattery J, Farrell B, Dennis M, Sandercock P. Qualitative comparison of the reliability of health status assessments with the EuroQol and SF-36 questionnaires after stroke. Stroke. 1998;29(1):63–68
  22. Dorman PJ, Dennis M, Sandercock P. How do scores on the EuroQol relate to scores on the SF-36 after stroke?. Stroke. 1999;30(10):2146–2151
  23. Essink-Bot ML, Krabbe PF, Bonsel GJ, Aaronson NK. An empirical comparison of four generic health status measures. The Nottingham Health Profile, the Medical Outcomes Study 36-item Short Form Health Survey, the COOP/WONCA charts and the EuroQol instrument. Med Care. 1997;35(5):522–537
  24. Hurst NP, Jobanputra P, Hunter M, Lambert CM, Lochead A, Brown H. Validity of EuroQol-a generic health status instrument in patients with rheumatoid arthritis. Br J Rheumatol. 1994;33:655–662
  25. Coucill W, Bryan S, Bentham P, Buckley A, Laight A. EQ-5D in patients with dementia. Med Care. 2001;39(8):760–771
  26. Selai C. Assessing quality of life in dementia. Med Care. 2001;39(8):753–755
  27. Lawton MP. Assessing quality of life in Alzheimer disease research. Alzheimer Dis Assoc Disord. 1997;11(6):91–99
  28. Kerner DN, Patterson TL, Grant I, Kaplan RM. Validity of the quality of Well-Being Scale for patients with Alzheimer's disease. J Aging Health. 1998;10(1):44–61
  29. Rabins PV, Kasper JD. Measuring quality of life in dementia: conceptual and practical issues. Alzheimer Dis Assoc Disord. 1997;11(6):100–104
  30. Cohen J. Weighted kappa: nominal scale agreement with provision for scaled disagreement or partial credit. Psychol Bull. 1968;70(4):213–220
  31. Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;33:159–174
  32. Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull. 1977;86(2):420–428
  33. Corder LS, Woodbury MA, Manton KG. Proxy response patterns among the aged: effects on estimates of health status and medical care utilization from the 1982–1984 long term care surveys. J Clin Epidemiol. 1996;49(2):173–182
  34. Cook DJ, Guyatt GH, Juniper E, Griffith L, McIlroy W, Willan A, et al. Interviewer versus self-administered questionnaires in developing a disease-specific, health-related quality of life instrument for asthma. J Clin Epidemiol. 1993;46(6):529–534
  35. Weinberger M, Oddone EZ, Samsa GP, Landsman PB. Are health-related quality-of-life measures affected by the mode of administration?. J Clin Epidemiol. 1996;49(2):135–140
  36. Grootendorst PV, Feeny DH, Furlong W. Does it matter whom and how you ask? Inter- and intra-rater agreement in the Ontario Health Survey. J Clin Epidemiol. 1997;50(2):127–135
  37. Riemsma RP, Forbes CA, Glanville JM, Eastwood AJ, Kleijnen J. General health status measures for people with cognitive impairment: learning disability and acquired brain injury. Health Technol Assess. 2001;5(6):1–100
  38. Ostbye T, Tyas S, McDowell I, Koval J. Reported activities of daily living: agreement between elderly subjects with and without dementia and their caregivers. Age Ageing. 1997;26(2):99–106
  39. Rothwell PM, McDowell Z, Wong CK, Dorman PJ. Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis. BMJ. 1997;314:1580–1583
  40. Sainfort F, Becker M, Diamond R. Judgments of quality of life of individuals with severe mental disorders: patient self-report versus provider perspectives. Am J Psychiatry. 1996;153(4):497–502
  41. Santos-Eggimann B, Zobel F, Clerc Bérod A. Functional status of elderly home care users: do subjects, informal and professional caregivers agree?. J Clin Epidemiol. 1999;52(3):181–186
  42. Sneeuw KC, Aaronson NK, Osoba D, Muller MJ, Hsu MA, Yung WK, et al. The use of significant others as proxy raters of the quality of life of patients with brain cancer. Med Care. 1997;35(5):490–506
  43. Teri L, Wagner AW. Assessment of depression in patient with Alzheimer's disease: concordance among informants. Psychol Aging. 1991;6(2):280–285
  44. Volicer L, Camberg L, Hurley AC, Ashley J, Woods P, Ooi WL, et al. Dimensions of decreased psychological well-being in advanced dementia. Alzheimer Dis Assoc Disord. 1999;13(4):192–201
  45. Polsky D, Willke RJ, Scott K, Schulman KA, Glick HA. A comparison of scoring weights for the EuroQol derived from patients and the general public. Health Econ. 2001;10(1):27–37
  46. van Agt HM, Essink-Bot ML, Krabbe PF, Bonsel GJ. Test-retest reliability of health state valuations collected with the EuroQol questionnaire. Soc Sci Med. 1994;39(11):1537–1544
  47. Badia X, Roset M, Herdman M. Inconsistent responses in three preference-elicitation methods for health states. Soc Sci Med. 1999;49(7):943–950
  48. Dolan P, Kind P. Inconsistency and health state valuations. Soc Sci Med. 1996;42(4):609–615
  49. Hurst NP, Kind P, Ruta D, Hunter M, Stubbings A. Measuring health-related quality of life in rheumatoid arthritis: validity, responsiveness and reliability of EuroQol (EQ-5D). Br J Rheumatol. 1997;36(5):551–559
  50. Krabbe PF, Stouthard ME, Essink-Bot ML, Bonsel GJ. The effect of adding a cognitive dimension to the EuroQol multiattribute health-status classification system. J Clin Epidemiol. 1999;52(4):293–301
  51. Krabbe PF, Essink-Bot ML, Bonsel GJ. The comparability and reliability of five health-state valuation methods. Soc Sci Med. 1997;45(11):1641–1652
  52. Macran S, Kind P. “Death” and the valuation of health-related quality of life. Med Care. 2001;39(3):217–227
  53. Suarez-Almazor ME, Conner-Spady B, Kendall CJ, Russell AS, Skeith K. Lack of congruence in the ratings of patients' health status by patients and their physicians. Med Decis Making. 2001;21(2):113–121
  54. Novella JL, Jochum C, Jolly D, Morrone I, Ankri J, Bureau F, et al. Agreement between patients' and proxies' reports of quality of life in Alzheimer's disease. Qual Life Res. 2001;10(5):443–452

PII: S0895-4356(03)00175-6

doi: 10.1016/S0895-4356(03)00175-6

Journal of Clinical Epidemiology
Volume 56, Issue 11 , Pages 1055-1063 , November 2003

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