Journal of Clinical Epidemiology
Volume 56, Issue 1 , Pages 61-67 , January 2003

A short psychosocial questionnaire for patients with Parkinson's disease: the SCOPA-PS

  • Johan Marinus

      Affiliations

    • Corresponding Author InformationCorresponding author. Tel.: +31 71 526 2547; fax: +31 71 524 8253.
    • Department of Neurology, Leiden University Medical Center K5 Q 92, P.O. Box 9600, NL - 2300 RC Leiden, The Netherlands
  • ,
  • Martine Visser

      Affiliations

    • Department of Neurology, Leiden University Medical Center K5 Q 92, P.O. Box 9600, NL - 2300 RC Leiden, The Netherlands
  • ,
  • Pablo Martı́nez-Martı́n

      Affiliations

    • Neuroepidemiology Unit, Department of Applied Epidemiology, National Center for Epidemiology I.S. Carlos III, C/Sinesio Delgado 6, 28029 Madrid, Spain
  • ,
  • Jacobus J van Hilten

      Affiliations

    • Department of Neurology, Leiden University Medical Center K5 Q 92, P.O. Box 9600, NL - 2300 RC Leiden, The Netherlands
  • ,
  • Anne M Stiggelbout

      Affiliations

    • Department of Medical Decision Making, Leiden University Medical Center, K6 R, Albinusdreef 2, 2333 ZA Leiden, The Netherlands

Received 7 March 2002 ,Revised 20 October 2002 ,Accepted 31 October 2002.

References 

  1. De Rijk MC, Launer LJ, Berger K, Breteler MM, Dartigues JF, Baldereschi M, et al. Prevalence of Parkinson's disease in Europe (a collaborative study of population-based cohorts. Neurologic Diseases in the Elderly Research Group). Neurology. 2000;54(11 Suppl 5):S21–S23
  2. Bowling A. Health-related quality of life (a discussion of the concept, its use and measurement. Measuring disease). Buckingham: Open University Press;; 1995; p. 1–19.
  3. Marinus J, Ramaker C, Van Hilten JJ, Stiggelbout AM. Health related quality of life in Parkinson's disease (a systematic review of disease specific instruments). J Neurol Neurosurg Psychiatry. 2002;72:241–248
  4. Damiano AM, Snyder C, Strausser B, Willian MK. A review of health-related quality-of-life concepts and measures for Parkinson's disease. Qual Life Res. 1999;8:235–243
  5. De Boer AG, Wijker W, Speelman JD, de Haes JC. Quality of life in patients with Parkinson's disease (development of a questionnaire). J Neurol Neurosurg Psychiatry. 1996;61:70–74
  6. Peto V, Jenkinson C, Fitzpatrick R, Greenhall R. The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease. Qual Life Res. 1995;4:241–248
  7. Van den Berg M. Leben mit Parkinson —Entwicklung und psychometrische Testung des Fragenbogens PLQ. Neurol Rehabil. 1998;4:221–226
  8. Gibb WR, Lees AJ. The relevance of the Lewy body to the pathogenesis of idiopathic Parkinson's disease. J Neurol Neurosurg Psychiatry. 1988;51:745–752
  9. Jenkinson C, Fitzpatrick R, Peto V, Greenhall R, Hyman N. The PDQ-8 (development and validation of a short-form Parkinson's disease questionnaire). Psychol Health. 1997;12:805–814
  10. Brooks R. EuroQol (the current state of play). Health Policy. 1996;37:53–72
  11. Zigmond AS, Snaith RP. The Hospital Anxiety and Depression scale. Acta Psychiatr Scand. 1983;67:361–370
  12. McDowell I, Newell C. Measuring health (A guide to rating scales and questionnaires). 2nd ed. New York: Oxford University Press;; 1996;
  13. Schrag A, Selai C, Jahanshahi M, Quinn NP. The EQ-5D—a generic quality of life measure—is a useful instrument to measure quality of life in patients with Parkinson's disease. J Neurol Neurosurg Psychiatry. 2000;69:67–73
  14. Martinez-Martin P, Frades PB. Quality of life in Parkinson's disease (validation study of the PDQ-39 Spanish version. The Grupo Centro for Study of Movement Disorders). J Neurol. 1998;245(Suppl 1):S34–S38
  15. Schrag A, Jahanshahi M, Quinn N. What contributes to quality of life in patients with Parkinson's disease?. J Neurol Neurosurg Psychiatry. 2000;69:308–312
  16. Schrag A, Jahanshahi M, Quinn NP. What contributes to depression in Parkinson's disease?. Psychol Med. 2001;31:65–73
  17. Hoehn MM, Yahr MD. Parkinsonism (onset, progression and mortality). Neurology. 1967;17:427–442
  18. Streiner DL, Norman GR. Health Measurement Scales (a practical guide to their development and use). 2nd ed. Oxford: Oxford Medical Publications;; 1995;
  19. Nunnally JC, Bernstein IH. Psychometric theory. 3rd ed. New York: McGraw-Hill, Inc.;; 1994;
  20. Helmstadter GC. Evaluation of tests—reliability. In:  Helmstadter GC editors. Principles of psychological measurement. London: Methuen & Co Ltd;; 1966;p. 58–86
  21. Hays RD, Anderson RT, Revicki D. Assessing reliability and validity of measurement in clinial trials. In:  Staquet MJ,  Hays RD,  Fayers PM editor. Quality of life assessment in clinical trials. Oxford: Oxford University Press;; 1998;p. 169–182
  22. Wright JG, Feinstein AR. A comparative contrast of clinimetric and psychometric methods for constructing indexes and rating scales. J Clin Epidemiol. 1992;45:1201–1218
  23. Berger K, Broll S, Winkelmann J, Heberlein I, Muller T, Ries V. Untersuchung zur Reliabilität der deutschen Version des PDQ-39 (Ein krankheitsspezifischer Fragenbogen zur Erfassung der Lebensqualität von Parkinson-Patienten). Aktuel Neurol. 1999;26:180–184
  24. Fitzpatrick R, Peto V, Jenkinson C, Greenhall R, Hyman N. Health-related quality of life in Parkinson's disease (a study of outpatient clinic attenders). Mov Disord. 1997;12:916–922
  25. Jenkinson C, Peto V, Fitzpatrick R, Greenhall R, Hyman N. Self-reported functioning and well-being in patients with Parkinson's disease (comparison of the short-form health survey (SF-36) and the Parkinson's Disease Questionnaire (PDQ-39)). Age Ageing. 1995;24:505–509
  26. Jenkinson C, Fitzpatrick R, Peto V, Greenhall R, Hyman N. The Parkinson's Disease Questionnaire (PDQ-39) (development and validation of a Parkinson's disease summary index score). Age Ageing. 1997;26:353–357
  27. Brown RG, Jahanshahi M, Quinn N, Marsden CD. Sexual function in patients with Parkinson's disease and their partners. J Neurol Neurosurg Psychiatry. 1990;53:480–486
  28. Welsh M, Hung L, Waters CH. Sexuality in women with Parkinson's disease. Mov Disord. 1997;12:923–927
  29. Calne S, Schulzer M, Mak E, Guyette C, Rohs G, Hatchard S, et al. Validating a quality of life rating scale for idiopathic Parkinsonism (Parkinson's impact scale). Parkinsonism Relat Disord. 1996;2:55–61
  30. Welsh M, McDermott M, Holloway R, Plumb S, Pfeiffer R, Hubble J. Development and testing of the Parkinson's disease quality of life scale (The PDQUALIF). Mov Disord. 1997;12:836
  31. Fahn S, Elton RL, members of the UPDRS Development Committee . Unified Parkinson's Disease Rating Scale. In:  Fahn S,  Marsden CD,  Goldstein M,  Clane DB editor. Recent developments in Parkinson's disease. Florham Park, NJ: Macmillan Healthcare Information;; 1987;p. 153–163
  32. Martı́nez-Martı́n P, Gil-Nagel A, Morlán Gracia L, Balseiro Gómez J, Martı́nez-Sarriés FJ, Bermejo F, et al. Intermediate scale for assessment of Parkinson's disease. Characteristic and structure. Parkinsonism Relat Disord. 1995;1:97–102
  33. Rabey JM, Bass H, Bonuccelli U, Brooks D, Klotz P, Korczyn AD, et al. Evaluation of the short Parkinson's Evaluation Scale (a new friendly scale for the evaluation of Parkinson's disease in clinical drug trials). Clin Neuropharmacol. 1997;20:322–337
  34. Bushnell DM, Martin ML. Quality of life and Parkinson's disease (translation and validation of the US Parkinson's Disease Questionnaire (PDQ-39)). Qual Life Res. 1999;8:345–350

PII: S0895-4356(02)00569-3

Journal of Clinical Epidemiology
Volume 56, Issue 1 , Pages 61-67 , January 2003